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_____I love capturing God's sense of humour. :)
Do you see the puppy shape in that cloud? Click on it to see larger!
Love, Oksana
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_____I love capturing God's sense of humour. :)
Do you see the puppy shape in that cloud? Click on it to see larger!
Posted by Oksana at 7:32 PM 4 comments
Labels: happiness, mystery, photograph
I'll return to my Matthew Perryman Jones-inspired series soon (he has a new CD coming out this week, btw), but a something has been heavy on my mind this weekend, and I'll share it with you before returning to my regular posting...
I discovered the horrible reality of a disease called Cystic Fibrosis several months ago, when I found Confessions of a CF Husband. Before I continue, let me urge you to visit that blog and dwelve deep into the archives... you will find so much strength, inspiration, and faith there. God has used this family in incredible ways, and it's a story that deserves to be heard.
After I lurked around on the above site for a while, I began to visit the comments section. I found several other people with CF, and visited their blogs. Somehow, through one of their blogrolls, I happened to come across Gina, a young woman with end-stage CF -- constantly on the ventilator, fighting to breathe, unable to eat, barely staying alive. I read each and every post on the blog, added it to my bookmarks, and began to pray for for the young woman nicknamed "Pepe."
It's amazing how quickly I found a love in my heart towards Pepe. Perhaps not real love, just yet... it's hard to really love someone when you know so little about them; as the blog mainly chronicled Pepe's technical, health-related details, rather than her life and personality. It wasn't love, but it was a connection. I thought about Pepe in my spare times. I began to carry her burdens. And I'm not bragging about this... I was only doing what we are all supposed to do. But, yesterday, that bag of burdens suddenly burst, and hundreds of thousands of people found out that it had been completely empty all this time. Gina exists. She is healthy. The "Pepe" we'd all come to know is simply a fictional character.
The blog "Friends of Pepe" had been kept by a man named Paul, who is a real CF sufferer and transplant survivor. He got email and phone updates from Pepe and her "friend," sharing them for the world to pray about. He wrote the following today:
Today, my trust was breached in a way I can hardly convey. The consequence is that yours was violated as well. Pepe confessed to me after much prodding that she has been propagating a series of lies, that no transplant ever occurred, that no transplant was even in question, that Blake does not exist, and that Pepe has in fact been at home most of this year rather than in ICU as I described in FOP [the blog]. This makes a moron of me, of course, and a farce of FOP, which 275,000 visitors took at face value for many months. It mocks the hardship I have personally faced, having actually been at 12 percent [lung function], as well as the battles many of you wage on a daily basis. It mocks the readers who wept literal tears over her drama, who worried, and who placed their full trust in what was, admittedly, a compelling story. ... Please know that no one has shed more tears over Pepe's fictional saga or suffered more from this betrayal than I have. As you know, I spent this year in a dual role: trying to help Pepe make it to "transplant," staying up till all hours with her, while simultaneously trying to recover from my own.
I cannot even begin to imagine how much this hurts people who have CF. It's hurt me, even though I've never felt any of Pepe's suffering first-hand. It hurts me, even though I've never chatted with Pepe, sent her gifts, or stayed up all night praying for her. Other people have experienced all of these things, and their pain is unfathomable to me. To me, it's like the loss of an acquaintance; to them, it's like the loss of a sister. This incident has occupied a lot my time for the past few days. Here are some thoughts currently running through my mind:
- I am so grateful that people are so willing to trust others online. I hope that this test of our trust will only make it stronger.
- I am so grateful that the internet allows people with CF to find support and mutual understanding, as well as giving people like me an opportunity to look into a different way of life.
- I don't think we should regret praying for Gina. I have no doubt that there are people going through the same sort of nightmare.... people who perhaps don't have access to the Internet, or a friend like Paul to make their stories public. I don't think our God had any problem redirecting those sincere prayers to people who really need them.
- I feel sorry for Gina. I hope she admits her problem, gets help, realizes how blessed she is not to be sick, and finds someone who can love her as the healthy person she is.
- Lastly, being on the recieving end of a false and exaggerated story has really shown me the importance of honesty. I'm definitely the sort of person who tends to exaggerate things to get a point across or get a reaction. Not, obviously, from 100,000 people, but that's irrelevant. I'm going to think more about my words, because there's no such thing as a "white lie." They all hurt.
Love, Oksana
Posted by Oksana at 1:19 PM 2 comments
Put your defense down
open up your heart and lay
all of it out
I know how hard it sounds
but loneliness will have its way
in feeding your doubts
waiting on the light
waiting on the light to change
I’m chasing out the lies
chasing out the lies
that keep you caged
I’m waiting, waiting on the light to change
No matter what’s inside
There is nothing you can say
to cause me to hide
You know I’m broken too
I’ve fallen far, I lost my faith
been found and made new...
Lyrics from Matthew Perryman's song "Waiting On the Light to Change."
Love, Oksana
Posted by Oksana at 9:05 AM 5 comments
Labels: God, matthew perryman jones
This post inspired by excerpts of the lyrics from "Breaking Out the Windows," by Matthew Perryman Jones.

Before I go, I just want to comment on another part of the lyrics in this song...
God knows your past, your present, and your future, and he loves you anyway.
Track 3 coming later...
Love, Oksana
Posted by Oksana at 3:39 PM 2 comments
Labels: matthew perryman jones, world news
Hey everyone...
I've had serious blogging-block for the past few days, so I've decided to try something different. I downloaded a really great album by Christian indie artist Matthew Perryman Jones at Noisetrade.com (a site where independent Christian musicians offer their music for free to fans). It's an album that has really inspired me and made me think, so I've decided to write a series of posts inspired by each of the tracks on the CD, "Throwing Punches in the Dark." We'll see how it goes. :)
Meghan's Song
Baby, sleep in peace tonight
Angels bend to watch the sight
And may your dreams be sweet tonight
Dance the sky in sweet delight
And know I love you
I always will
It’s my favorite story
I have to tell
And Baby, let’s go far away
See this world that God has made
And know our hearts are in his hand
This lovely one who counts the sands...
Wow... now that I've actually posted the song, I'm not sure what to write. I guess I'll just share a few of the things that it makes me think about and feel:
Posted by Oksana at 7:01 PM 1 comments
Labels: dream, life, matthew perryman jones, photograph
PS. Here's a portrait of one of my past pets, a dancing ladybug! :)
Posted by Oksana at 11:18 AM 5 comments
Labels: life, photograph
I don't really like the next shot. I had intended to get the fence into the picture, but, now that I look at it again, I really wish it weren't there. It spoils the beautiful greenery and light on the other side. I feel compelled to post it, though, because I think it speaks of looking past the bad, and trying to see the beauty in life. Cliched, I know. :)
At the same spot, I found this little guy... he would not stop weaving in and out of the fence, but stopped long enough for me to get this shot:
And I took a few contemplative, reflective pictures that I love, because they sort of describe my life these past few months. I'll let you decipher them yourselves, but I'd be interested in knowing how they make you feel. Perhaps I'll tell you in a later post what they mean to me.
Love, Oksana
Posted by Oksana at 9:24 AM 7 comments
Labels: photograph, summer